Caroline is a health care professional and Interfaith Minister. Caroline lost her sister and mother to dementia. Caroline’s sister was born with Down’s syndrome and was in the eighth percentile of people with Down’s syndrome who develop dementia in their mid-30s. Five months after Caroline’s sister’s diagnosis her mother was admitted to a residential care home because she too had developed dementia.
Participating in long-term care research helps Caroline give a level of meaning to her own experience. Participating in long-term care research helps Caroline give a level of meaning to her lived experience and provides an opportunity for her to help other people who may be on a similar journey.