April 2019 – ongoing (48 months duration)

Due to the Covid-19 pandemic the project team encountered delay in conducting the environmental scan and family carer engagement. The team are delivering a multiple methods sequential design to implement and evaluate the Family Carer Decision Support educational intervention. The cross-country evaluation will extend late into 2022 and early 2023.

This intervention consists of two parts: the booklet ‘Comfort Care at the End of Life for persons with Advanced Dementia’ and a questionnaire prompt list to guide the family care conference or meetings.