mySupport study blog articles
How can we support family caregivers of people with an intellectual disability and dementia?
Author: Caroline Lennon-Nally, mySupport study Strategic Guiding Council member and Maria Nicula, McMaster University, Canada
Date of Publication: October 2021
Keywords: Intellectual disability, Down’s syndrome, Dementia, Palliative care, Family caregivers, Classic diagnostic tools, Cognitive Assessment, Neuroimaging
Supporting the Implementation of Comfort Care at the End-of-Life
Author: Bianca Tétrault, Social Work Intern, McGill University, Montreal, Canada
Date of Publication: September 2021
Keywords: Dementia, Comfort care, Stuck points, End of life care decision making, social change, Compassionate understanding, Storytelling
Being on one ship: Developing trust between family carers and nursing home staff requires effective communication
Authors: Hana Convoy, mySupport study Strategic Guiding Council and Karolína Vlčková, Center for Palliative Care, Czech Republic
Date of Publication: August 2021
Keywords:Dementia, Nursing home, Communication, Trust
An International Early Career Research Committee – Members’ Experiences
Authors: Dr Adrienne McCann, Research Fellow, Queen’s University Belfast, United Kingdom
Date of Publication: July 2021
Keywords: Early career researcher, Peer support, Capacity building, Mentorship, Knowledge transfer and exchange
Establishing an International Early Career Research Committee and Mentorship Programme
Authors: Dr Serena FitzGerald, University College Cork, Ireland and mySupport study Co-Investigator and Early Career Research Committee Director
Date of publication: July 2021
Keywords: Early career researcher, Peer support, Capacity building, Mentorship, Knowledge transfer and exchange
Developing an International Public and Patient Involvement Group for Dementia Research
Authors: Danielle Just, McMaster University and Emily Di Sante, McMaster University
Date of publication: June 2021
Keywords: Patient and Public Involvement, family carers, end-of-life care, good death
The development of a question prompt list to support family caregivers of people with dementia in advance care planning
Author: Laura Bavelaar, MSc Leiden University Medical Center
Date of publication: May 2021
Keywords: Dementia, Family caregiver, Patient engagement, Shared decision making, End-of-life care, Nursing home
COVID-19 Restricted family access measures in Canada; the impact on nursing home staff
Authors: Dr Tamara Sussman, McGill University, Ms. Susan Mintzberg, McGill University and Dr Sharon Kaasalainen, McMaster University
Date of publication: April 2021
Keywords: moral distress; family visitation; compassion
Residents and families mourn as restrictions are imposed on visiting nursing homes during the COVID-19 pandemic
Author: Dr Irene Hartigan, University College Cork
Date of publication: February 2021
Keywords: restricted visiting, long-term care environments, separation, anticipatory grief, loss, anticipatory mourning
Do We All Have an Advance Care Plan?
Author: Dr Karen Harrison Dening, Dementia UK
Date of publication: December 2020
Keywords: Advance Care Planning
Preventing, Correcting, and Managing Undernutrition in a Person with Dementia
Author: Dr Irene Hartigan, University College Cork
Date of publication: November 2020
Keywords: Hydration, Nutrition, Dementia, Comfort feeding, Autonomy, Decision-Making
The Impact of Contextual Factors on End-of-Life Care in Nursing Homes in the Czech Republic
Author: Karolina Vlckova, MSc., Centre for Palliative Care
Date of publication: October 2020
Keywords: End-of-life care, Nursing Homes, Advance Care Planning, Palliative Care, Advance Directives
Advance Care Planning as a Medium for Providing Care Aligned to Peoples Wishes
Author: Dr Nicola Cornally, University College Cork
Date of publication: March 2020
Keywords: Advance Care Directive, Advance Care Planning, Self-determination Theory, End-of-life Decision Making
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