Blogs

mySupport study blog articles

The importance of small-scale residential care units for people with dementia in the Netherlands

Author: Marianne van Brussel, mySupport study Strategic Guiding Council member, the Netherlands
Date of Publication: April 2022

Keywords: demographic developments, dementia, policy developments, small-scale residential care units in the nursing home and in the community, quality of life

A diagnosis of ‘dementia’ is not enough; the type of dementia influences the window for shared decision-making

Author: Professor Suzanne Timmons, Centre for Gerontology and Rehabilitation, University College Cork
Date of Publication: March 2022

Keywords: Dementia type, diagnosis, progression, anticipating symptoms, conversations, advanced care planning

‘Necessary Discussions’, supporting family carers and staff in advance care planning during a COVID-19 outbreak in a care home

Author: Professor Kevin Brazil, Professor of Palliative Care School of Nursing and Midwifery, Queen’s University Belfast, United Kingdom
Date of Publication: February 2022

Keywords:  Advance care planning, care homes, nursing homes, online resource

Changes to Dutch policy on care homes and the impact to older adults

Author: Marianne van Brussel, mySupport study Strategic Guiding Council member, the Netherlands
Date of Publication: November 2021

Keywords: healthcare policy changes, economy measures, wishes of older people, loneliness

How can we support family caregivers of people with an intellectual disability and dementia?

Author: Caroline Lennon-Nally, mySupport study Strategic Guiding Council member and Maria Nicula, McMaster University, Canada
Date of Publication: October 2021

Keywords: Intellectual disability, Down’s syndrome, Dementia, Palliative care, Family caregivers, Classic diagnostic tools, Cognitive Assessment, Neuroimaging

Supporting the Implementation of Comfort Care at the End-of-Life

Author: Bianca Tétrault, Social Work Intern, McGill University, Montreal, Canada
Date of Publication: September 2021

Keywords: Dementia, Comfort care, Stuck points, End of life care decision making, social change, Compassionate understanding, Storytelling

Being on one ship: Developing trust between family carers and nursing home staff requires effective communication

Authors: Hana Convoy, mySupport study Strategic Guiding Council and Karolína Vlčková, Center for Palliative Care, Czech Republic
Date of Publication: August 2021

Keywords:Dementia, Nursing home, Communication, Trust

An International Early Career Research Committee – Members’ Experiences

Authors: Dr Adrienne McCann, Research Fellow, Queen’s University Belfast, United Kingdom
Date of Publication: July 2021

Keywords: Early career researcher, Peer support, Capacity building, Mentorship, Knowledge transfer and exchange

Establishing an International Early Career Research Committee and Mentorship Programme

Authors: Dr Serena FitzGerald, University College Cork, Ireland and mySupport study Co-Investigator and Early Career Research Committee Director
Date of publication: July 2021

Keywords: Early career researcher, Peer support, Capacity building, Mentorship, Knowledge transfer and exchange

Developing an International Public and Patient Involvement Group for Dementia Research

Authors: Danielle Just, McMaster University and Emily Di Sante, McMaster University
Date of publication: June 2021

Keywords: Patient and Public Involvement, family carers, end-of-life care, good death

The development of a question prompt list to support family caregivers of people with dementia in advance care planning

Author: Laura Bavelaar, MSc Leiden University Medical Center
Date of publication: May 2021

Keywords: Dementia, Family caregiver, Patient engagement, Shared decision making, End-of-life care, Nursing home

COVID-19 Restricted family access measures in Canada; the impact on nursing home staff

Authors: Dr Tamara Sussman, McGill University, Ms. Susan Mintzberg, McGill University and Dr Sharon Kaasalainen, McMaster University
Date of publication: April 2021

Keywords: moral distress; family visitation; compassion

Residents and families mourn as restrictions are imposed on visiting nursing homes during the COVID-19 pandemic

Author: Dr Irene Hartigan, University College Cork
Date of publication: February 2021

Keywords: restricted visiting, long-term care environments, separation, anticipatory grief, loss, anticipatory mourning

Do We All Have an Advance Care Plan?

Author: Dr Karen Harrison Dening, Dementia UK
Date of publication: December 2020

Keywords: Advance Care Planning

Preventing, Correcting, and Managing Undernutrition in a Person with Dementia

Author: Dr Irene Hartigan, University College Cork
Date of publication: November 2020

Keywords: Hydration, Nutrition, Dementia, Comfort feeding, Autonomy, Decision-Making

The Impact of Contextual Factors on End-of-Life Care in Nursing Homes in the Czech Republic

Author: Karolina Vlckova, MSc., Centre for Palliative Care
Date of publication: October 2020

Keywords: End-of-life care, Nursing Homes, Advance Care Planning, Palliative Care, Advance Directives

Advance Care Planning as a Medium for Providing Care Aligned to Peoples Wishes

Author: Dr Nicola Cornally, University College Cork
Date of publication: March 2020

Keywords:  Advance Care Directive, Advance Care Planning, Self-determination Theory, End-of-life Decision Making