Supporting care home staff to engage in decision-making with family carers: scaling up an educational intervention

Supporting care home staff to engage in decision-making with family carers: scaling up an educational intervention2020-03-11T12:00:28+00:00

Making decisions about care

When a person with dementia that is living in a nursing home loses the capacity to make a decision for him/ herself, nursing home staff must deliver care that is in the person’s best interest. There is evidence that families often experience uncertainty about the illness progression, especially when they are not given an opportunity to discuss their relative’s prognosis and fundamental aspects of their care.

An educational intervention called the Family Carer Decision Support (FCDS) intervention has been developed to assist nursing home staff in supporting family carers when they need to make difficult decisions about end-of-life care for their relative with advanced dementia. The FCDS intervention is the focus of mySupport study, a transnational multidisciplinary implementation study.

Who are the Research Partners?

The Research Partners are from six countries: United Kingdom (Northern Ireland and England); Republic of Ireland (Cork County); Netherlands (Leiden); Canada (Hamilton, Montreal); Czech Republic (Prague) and Italy (Turin). Nursing homes will be selected in each member country for implementation and evaluation of the FCDS intervention.

Please click on the following link to find out more: Partners.

Research Project Title

Scaling up the Family Carer Decision Support Intervention: A transnational effectiveness-implementation evaluation


Our recent Consortium meeting. The researchers from six countries are all in solidarity together during this difficult time. Canada, Netherlands, UK, Ireland, Czech Republic and Italy.

We are looking for people to join our Voluntary Advisory Group. If you have experience caring for a family member with dementia in Ireland, and would like to contribute to conversations about dementia and end-of-life care, please get in touch with us.

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